This workstream, part of the National COPD Audit Programme, involved snapshot data collection relating to service provision and delivery of pulmonary rehabilitation for COPD.
On 1 March 2018, adult and paediatric asthma were added to the National COPD Audit Programme when the National Asthma and COPD Audit Programme (NACAP) was launched.
Previous snapshot audits were conducted in 2015 and, subsequently, both organisational, clinical and outcome reports were published. A range of resources to assist in local implementation of the audit are also available to view.
An interactive map of all pulmonary rehabilitation services and sites included in the 2017 audit is also available to view.
The above timeline may be subject to change but we will keep you updated regarding any changes and provide additional timeline details as they are confirmed.
All data collected by the audit programme will be processed to ensure patient confidentiality is maintained.
This audit operates under a consent model, meaning that patients are required to provide informed consent prior to their data being collected and processed (to see the consent form and patient information sheet, please go to the resources section).
Identifiable patient data will be entered onto an online data collection tool managed by Crown Informatics between 3 January 2017 and 31 July 2017. Once the data collection period has ended, Crown Informatics will send these data to the RCP in a completely anonymised format for analysis and reporting. A national report, similar to the one published in 2015 (Pulmonary rehabilitation: Steps to breathe better) will be published using these data. Only aggregate data will be presented, and no information will be released that could be used to identify individuals.
The next stage in this process will be to link the audit information (collected in the method outlined above) with data already held by NHS Digital; namely the Hospital Episodes Statistics (HES) dataset and the Office of National Statistics (ONS) mortality data. HES is a record of all hospital admissions in England, while ONS mortality data is sourced from civil registration data. NHS Digital will receive patient identifiable information (NHS number, date of birth and postcode) from Crown Informatics and will use this to link the audit data to these sources. Once the data has been linked, it will be sent back to Crown Informatics, who will remove all patient identifiable information. The RCP will then be sent the anonymised patient level records for the patients that participated in the audit from both HES and ONS (cause of death, and month and year of death will be provided to the RCP from ONS mortality data).
These data (ie audit data linked to HES and ONS) will be used to produce a supplement to the national clinical report. Only aggregate data (at a national level) will be presented and no information will be released that could be used to identify individuals.
Please note that the data collected for this audit may periodically be shared with other organisations in a completely anonymised format. Circumstances may include research, or for local quality improvement initiatives. Data will only be shared if appropriate legal approvals are in place, and no information that could be used to identify individuals will be released. Any such use of the data will always be in line with the overall aims of improving care and services for people with COPD.
If you have consented to your data being collected for this pulmonary rehabilitation audit and wish to revoke your consent, please either tell your pulmonary rehabilitation team or contact a member of the audit programme team by email firstname.lastname@example.org or phone +44 (0)20 3075 1526.
For more information on the programme's data flows please read the patient leaflet on the audit resources page.